Great Strides (Again)

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Over the years Betsy and I have participated in the Cystic Fibrosis Foundation’s Great Strides fundraising walk. It is held annually across the country during the month of May, coinciding with Cystic Fibrosis Awareness month. Last year, for the first time, some friends helped us organize a team to walk on behalf of Betsy. It was a chilly morning but such an encouragement to see so many friends and family come together to support Betsy.

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Team Breath4Betsy 2016

We are walking as a team again this year. “Breathe4Betsy” was coined by one of my sisters a couple of years ago to use as a social media hashtag as a way to encourage Betsy before a particularly nerve wracking breathing test. Through a lack of other great ideas, we decided to recycle the name for our team.  I’m glad the name has stuck. The name is a reminder of how a simple thing such as taking a breath of fresh air is difficult for Betsy.

Of course the actual walk is only one component. Equally important is the fundraising that we are trying to do as a team. We set a team goal of $3500. Earlier this week we hit our fundraising target. We are thankful for everyone who donated to this important cause. There is so much promising research going on. The Cystic Fibrosis Foundation has a webpage dedicated to all of the medications in various stages of the development pipeline. None of these new treatments would be possible without research dollars. Every dollar that goes towards CF research provides Betsy and many others with the hope of a different life. When Betsy was born, the life expectancy of the average person with CF was around 18 years old. Now, a cure for the disease is within the realm of possibility.

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If you would be interested in partnering with us, we would love your support! You can donate to our team’s ongoing fundraising efforts by clicking here. It’s a pretty painless process. And every dollar really does make a difference!

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Great Strides 2017 – Breathe4Betsy

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It’s that time of year again, Great Strides time! Great Strides is the Cystic Fibrosis Foundation’s largest national fundraising event.  Here is an explanation from their website:

Each year, more than 125,000 people participate in hundreds of walks across the country to support the Foundation’s mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe.

The CF Foundation is leading the way in innovative research and drug development, promoting high-quality, individualized care and helping people with CF live better todays. Nearly every CF drug was made possible by the Foundation and because of funds raised from Great Strides, people with CF are living longer, healthier lives and pursuing their dreams. But still, the lives of people with this disease are still cut far too short.

Great Strides provides a fantastic opportunity for family, friends, students and colleagues to come together to help make a difference in the lives of people with CF.

Together, let’s LACE UP. WALK. CURE CYSTIC FIBROSIS.

We had a great time walking with our teammates last year and we raised over $4000. Please join us in our efforts this year!  If you’re local and can come to the event, it is being held on May 13th at 11:00am.  This year’s location is at Millpond Park in Saline due to construction at the usual walk site.  To join our team, please sign up here. If you’re not local, you can still sign up for the team and raise money as a virtual walker. If you would like to support my fundraising efforts, please visit my personal page.

 

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Come take steps and make strides with us!

We have so much hope that new life-altering treatments and maybe even a cure will be discovered in my lifetime. There is a lot of positive momentum now and strides are truly being made.

We’re not there yet, but we’re closer than we were yesterday. And so we keep walking.

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Thank you all for your love and support!

The Chilliest Great Strides Walk of All Time

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I don’t know that for certain but I do know it was 36 degrees this morning when I woke up and not a whole lot warmer by the time we all met up for the Great Strides fundraising walk today. Come on people, it’s May for crying out loud!

Overall though, it was a great success! We had about 30 team members who braved the chilly weather to walk with Betsy and our team managed to raise over $4000 for cystic fibrosis research.

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(Most of) Our Great Strides Team!

We are very thankful for all of our friends and family who participated in one way or another. We are thankful for tangible expressions of solidarity and support. And we are thankful for the ongoing research that is working to develop new treatments for people with cystic fibrosis and hopefully, one day, a cure.

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Betsy, Lucas, and I rocking our pink #Breathe4Betsy headbands!

The Great Strides campaign is now done for 2016 but you can support cystic fibrosis research any time at the Cystic Fibrosis Foundation website!

Thanks again to everyone for their love and support!

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A few weeks ago, some dear friends of ours approached us about forming a team to walk in this year’s local Great Strides walk. They’ve named the team Breathe4Betsy and we are working to gain members and raise money for the walk!

Here is an explanation of Great Strides from the Cystic Fibrosis Foundation’s website:

Great Strides is the Cystic Fibrosis Foundation’s largest national fundraising event. Each year, more than 125,000 people participate in hundreds of walks across the country to support the Foundation’s mission to cure cystic fibrosis. The funds raised from Great Strides helps provide people with CF the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.

Great Strides continues to gain momentum, as do our research efforts and the progress we’ve made in the search for a cure. The CF Foundation has raised and invested hundreds of millions of dollars to support the development of new CF drugs and therapies.

Jaime and I have participated in this walk on and off over the years as individuals and are excited and honored by the formation of this team!  If you are local and you can join us, check out Breathe4Betsy’s Team Page. We’d love to have you on the team. This year’s walk is Saturday, May 14th at 11:00am at Gallup Park in Ann Arbor. You can also join as a virtual walker if you want to raise funds but can’t make the event. If you would like to support my fundraising efforts, please check out My Personal Page.

Because I love including photos in my blog posts, I’ve added these pictures of Jaime, Lucas and I walking at Nichols Arboretum this past fall (see the connection?!) Gallup park should be equally beautiful in May! The Great Strides walk is a 5K though, so with that in mind, I’ll definitely be wearing different shoes.

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Lucas always takes us off the beaten path…in more ways than one.

Thank you for your support! We hope and pray that CF will soon stand for “Cure Found.”