Lace Up Fail & Moving On

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Welp. It’s time for an update, and it’s not exactly the one I was hoping to give you four weeks after I planned to re-instituting Operation Lace Up. Unfortunately, just a few days after my last exercise post, I entered the dreaded adjustment phase and this time it was lengthy and difficult. I spent two weeks feeling awful, and a third recovering from feeling awful. Forget working out, I was just trying to get through each day in one piece. I would cough incessantly for several hours upon waking and experience coughing fits on and off throughout the day. The first week I was chilled unless I took a fever-reducer. I was exhausted, sore and short of breath most of the time. My body felt battered and my emotions were pretty beat-up too.

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This sums up how I felt those three weeks (and it made me laugh!).

Thankfully my health started to turn around physically and emotionally and I was feeling more human last Friday when I headed to the doctor for a routine visit. Even though things were better, I had no idea what to expect after the difficulties of the prior weeks. I was hoping my lung function would be stable and the doctor would have some answers for me about why I keep having so much trouble maintaining the benefits of antibiotic therapy once I’m off.

The good news is that my lung function was stable at 38%. It was a relief to see that number given how ill I had felt the weeks prior. I wouldn’t have been surprised if it were far worse than that. Even through all the sicknesses of this winter, my lung function remained around that 38% which is good since last year it dipped to 32%. The bad news is my doctor didn’t have any explanation as to why I keep having these adjustment periods after treatment. He said my symptoms are not considered common or normal even for CF, at least not to the extent that I’m experiencing them. It was discouraging not to have an answer or even a theory, but that is often what life is like with a disease like cystic fibrosis. Sometimes there are no plausible explanations for why things happen (or don’t happen). There’s not much to do but shrug your shoulders and move on.

Moving on means that now that I’m feeling better, it’s time to get back to that exercise! My doctor warned me that it’s going to be mighty difficult at the beginning given what my body has been through these last months. He told me not to get discouraged and to take it slowly. So I’ve decided to do the modified Couch to 5K again, starting next week.  I know that sounds like procrastination, but this week I’m walking on top of increasing my activity level with Lucas in an effort to ease into this. It’s been nice having the energy to be more active with Lucas again, and although unconventional, it’s still great exercise for me. We’ve been ambling around our neighborhood, visiting our local petting farm, playing with friends, and working together in the yard. Spending time with my boy and basking in the great weather we’ve been having is surely medicine for my body and soul.

Conventional exercise will be good medicine for me too, and once I start the Couch to 5K program next week, I should be able to jog two miles without stopping at the end of six weeks.  That’s my revised goal. I’m hoping and praying that regular exercise, good sleep, stability in my health, and some warm, virus-free months will get my lung function headed in the right direction. While I am grateful for that 38%, I don’t want that to be my new baseline.

I headed out for a walk the other day, and what song should pop up in the shuffle but the song Tubthumping by Chumbawamba. You know, “I get knocked down, but I get up again, you’re never gonna keep me down…” It made me smile because Jaime loaded that song on my iPod years ago as a joke when I was nervously restarting exercise after being leveled by an emergency operation. Never mind that the song is about falling over because you’ve had too much to drink, the refrain fits! Hearing it the other day was a good reminder that I’ve been in similar situations before, knocked down as it were by this disease. And God has always given me the strength to get up again and keep going. It’s going to be hard, but it’s time to dust myself off and move on.

Put one foot in front of the other
And soon you’ll be walking ‘cross the floor
Put one foot in front of the other
And soon you’ll be walking out the door

If you want to change your direction
If your time of life is at hand
Well don’t be the rule, be the exception
A good way to start is to stand.

(Who can name that song??) 🙂

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